Advocate

I am a patient advocate for cystic fibrosis, which I was diagnosed with as an infant. In December of 2020 I started Trikafta, a medicine which has finally allowed me to picture a future. I advocate to improve treatments and ultimately for a cure for people with CF. I also advocate for educational and vocational supports for people with cystic fibrosis, especially as they have new found life with new medical advancements. #untilitsdone

 

Cystic Fibrosis Foundation, Metro DC

  • Metro DC Chapter Ambassador, 2021

  • VA-8 District Advocacy Captain, 2019-Present

 

 

Cystic Fibrosis Foundation, National Offices

  • Teen Peer Support Group Facilitator

  • "Day of Action" Ambassador, February 2020.

  • CF Foundation Online Conferences

    • 2019 FamilyCon: Tips and Tricks from the Adult CF Panel, Panelist

    • 2018 MiniCon: Transplant Planning Workgroup and Session Facilitator

    • 2018 MiniCon: Sexual and Reproductive Health, Session Facilitator

    • 2017 MiniCon: Transplant, Session Facilitator