top of page


My Advocacy Story

As someone who was diagnosed with cystic fibrosis as an infant, I am deeply committed to advocating for the needs of CF patients. My personal experience with the disease and the life-changing benefits of Trikafta, a medicine I started taking in December 2020, have fueled my passion to drive improvements in CF treatments and ultimately find a cure. Additionally, I advocate for educational and vocational support for people with cystic fibrosis, especially as they gain new opportunities and hope with new medical advancements. Through my advocacy efforts, I am dedicated to raising awareness and rallying support for CF patients until we achieve our ultimate goal: finding a cure. #untilitsdone


Boomer Esiason Foundation

  • Scholarship Committee Member, 2022-2

Cystic Fibrosis Foundation, Metro DC

  • Metro DC Chapter Ambassador, 2021

  • VA-8 District Advocacy Captain, 2019-2023



Cystic Fibrosis Foundation, National Offices

  • Adult Advisory Council, 2021-2023

  • Volunteer Leadership Conference: Telling Your Story with Social Media, 2023

  • Volunteer Leadership Conference: Organizing for Effective Advocacy: Celebrating the Congressional Captains Program, July 2022

  • Teen Peer Support Group Facilitator

  • "Day of Action" Ambassador, February 2020.

  • CF Foundation Online Conferences

    • 2019 FamilyCon: Tips and Tricks from the Adult CF Panel, Panelist

    • 2018 MiniCon: Transplant Planning Workgroup and Session Facilitator

    • 2018 MiniCon: Sexual and Reproductive Health, Session Facilitator

    • 2017 MiniCon: Transplant, Session Facilitator


-University of Maryland 1st Year Medical Students, 2020-2023

Katie Fielding wearing pinks coughs into her arm while using a Tobi Podhaler
Katie Fielding standing in her kitchen in a light blue sweater counting pills into a combler.
bottom of page